What medical equipment and medication you should bring when going to the hospital.

My experience after five months of being off of Evrysdi (Risdiplam), a medication for people with SMA.

Planning ahead to go on a trip with a disability.

Struggling to get insurance approval for Evrysdi and being forced to stop a meditation that treats SMA.

Challenges with intubation and respiratory issues because of SMA.

The barriers I faced in school due to SMA and how I fought to become an independent student with a disability.

A story about how I got left dangling over the toilet and my dad almost having a heart attack. We can laugh about it now.

Dental problems due to spinal muscular atrophy and why you should get adult braces

Recommendations for finding adult doctors when aging out of pediatric care.

Recovering from wisdom teeth surgery with SMA.

The disabled community is forgotten when it comes to equality and universal design.

Reflecting on my worsening progression of SMA and how I used to feel.

According to a report by the Federal Aviation Administration, airlines mishandled more than 10,000 wheelchairs and scooters in 2019.

There were two major items on my college checklist: a wheelchair-accessible campus and an amazing football team.

Creative ways to organize medical equipment.

The only time I actually feel free and able to fully use my body is when I’m swimming in the pool.

Ways to create a genuine relationship with somebody who has a disability and how to spread empathy.

Tips for going to a concert in a wheelchair

I’m going to take you room by room and share my tips for designing a wheelchair-accessible dream home.

Recipe for an all-natural protein smoothie