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What to Bring to the Hospital
What medical equipment and medication you should bring when going to the hospital.
Jun 27, 2022


Side Effects from Stopping Evrysdi
My experience after five months of being off of Evrysdi (Risdiplam), a medication for people with SMA.
Jun 20, 2022


That One Time in Vegas
Planning ahead to go on a trip with a disability.
Jun 8, 2022


I Stopped Taking Evrysdi
Struggling to get insurance approval for Evrysdi and being forced to stop a meditation that treats SMA.
May 23, 2022


Successful Intubation and Anesthesia
Challenges with intubation and respiratory issues because of SMA.
May 2, 2022


Early Education Obstacles
The barriers I faced in school due to SMA and how I fought to become an independent student with a disability.
Apr 20, 2022


When Your Equipment Breaks
A story about how I got left dangling over the toilet and my dad almost having a heart attack. We can laugh about it now.
Mar 30, 2022


Having Adult Braces
Dental problems due to spinal muscular atrophy and why you should get adult braces
Mar 21, 2022


Transitioning to Adult Care
Recommendations for finding adult doctors when aging out of pediatric care.
Mar 9, 2022


Removing Wisdom Teeth While Dealing with Respiratory Issues
Recovering from wisdom teeth surgery with SMA.
Mar 4, 2022


The Misery of Accessible House Hunting
The disabled community is forgotten when it comes to equality and universal design.
Feb 24, 2022


Stop Surviving and Start Living
Reflecting on my worsening progression of SMA and how I used to feel.
Feb 18, 2022


Let’s Make Flying More Accessible
According to a report by the Federal Aviation Administration, airlines mishandled more than 10,000 wheelchairs and scooters in 2019.
Jan 26, 2022


Succeeding as a Disabled College Student
There were two major items on my college checklist: a wheelchair-accessible campus and an amazing football team.
Jan 14, 2022


Hiding Medical Equipment
Creative ways to organize medical equipment.
Dec 14, 2021


The Freedom to Swim
The only time I actually feel free and able to fully use my body is when I’m swimming in the pool.
Dec 10, 2021


How To Be a Good Friend
Ways to create a genuine relationship with somebody who has a disability and how to spread empathy.
Dec 1, 2021


Getting Wheelchair Accessible Concert Tickets
Tips for going to a concert in a wheelchair
Nov 24, 2021


Building a Wheelchair Accessible Home
I’m going to take you room by room and share my tips for designing a wheelchair-accessible dream home.
Nov 19, 2021


Monitoring Calories and Protein Consumption
Recipe for an all-natural protein smoothie
Nov 12, 2021
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