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Interview: Writing a Book with a Disabled Character
Introducing readers to spinal muscular atrophy and sharing an authentic disability experience.
Sep 9, 2022


Gaming with a Disability
Setting up my Xbox Adaptive Controller and playing video games with a disability.
Aug 24, 2022


Shopping for Clothes with a Disability
The challenges of buying pants while in a wheelchair.
Aug 10, 2022


Finding a Disability Friendly Hobby
My search to keep me busy with an accessible hobby, like I don't have enough going on.
Jul 20, 2022


Accessible Summer Activities for Kids with SMA
List of summer activities for wheelchair users and people with disabilities.
Jul 5, 2022


What to Bring to the Hospital
What medical equipment and medication you should bring when going to the hospital.
Jun 27, 2022


Side Effects from Stopping Evrysdi
My experience after five months of being off of Evrysdi (Risdiplam), a medication for people with SMA.
Jun 20, 2022


That One Time in Vegas
Planning ahead to go on a trip with a disability.
Jun 8, 2022


I Stopped Taking Evrysdi
Struggling to get insurance approval for Evrysdi and being forced to stop a meditation that treats SMA.
May 23, 2022
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