Interview: Writing a Book with a Disabled Character
Introducing readers to spinal muscular atrophy and sharing an authentic disability experience.
- Aug 24
Gaming with a Disability
Setting up my Xbox Adaptive Controller and playing video games with a disability.
- Aug 9
Shopping for Clothes with a Disability
The challenges of buying pants while in a wheelchair.
- Jul 20
Finding a Disability Friendly Hobby
My search to keep me busy with an accessible hobby, like I don't have enough going on.
- Jul 4
Accessible Summer Activities for Kids with SMA
List of summer activities for wheelchair users and people with disabilities.
- Jun 26
What to Bring to the Hospital
What medical equipment and medication you should bring when going to the hospital.
- Jun 20
Side Effects from Stopping Evrysdi
My experience after five months of being off of Evrysdi (Risdiplam), a medication for people with SMA.
- Jun 8
That One Time in Vegas
Planning ahead to go on a trip with a disability.
- May 23
I Stopped Taking Evrysdi
Struggling to get insurance approval for Evrysdi and being forced to stop a meditation that treats SMA.
- May 2
Successful Intubation and Anesthesia
Challenges with intubation and respiratory issues because of SMA.
- Apr 20
Early Education Obstacles
The barriers I faced in school due to SMA and how I fought to become an independent student with a disability.
- Mar 30
When Your Equipment Breaks
A story about how I got left dangling over the toilet and my dad almost having a heart attack. We can laugh about it now.
- Mar 21
Having Adult Braces
Dental problems due to spinal muscular atrophy and why you should get adult braces
- Mar 9
Transitioning to Adult Care
Recommendations for finding adult doctors when aging out of pediatric care.
- Mar 4
Removing Wisdom Teeth While Dealing with Respiratory Issues
Recovering from wisdom teeth surgery with SMA.
- Feb 24
The Misery of Accessible House Hunting
The disabled community is forgotten when it comes to equality and universal design.
- Feb 18
Stop Surviving and Start Living
Reflecting on my worsening progression of SMA and how I used to feel.
- Jan 26
Let’s Make Flying More Accessible
According to a report by the Federal Aviation Administration, airlines mishandled more than 10,000 wheelchairs and scooters in 2019.
- Jan 14
Succeeding as a Disabled College Student
There were two major items on my college checklist: a wheelchair-accessible campus and an amazing football team.
- Dec 14, 2021
Hiding Medical Equipment
Creative ways to organize medical equipment.